Tri-Somy 21. These were new words to me. I had never even known anyone with Down’s syndrome before. We were about to get a crash course! This was baby number 5 for me. I was a busy mom with a 7 year old son, 5 yo daughter, 3 year old daughter, and an 18 month …
Your sister has anencephaly I was so sad to tell my children that their little sister had anencephaly and wouldn’t survive. We had had a cold, rough April, and now, on May 4th 2022, my kids were all happily enjoying the outdoors when we finally arrived back home. We were still waiting for my oldest …
As someone that isn’t usually emotional, it was scary to find myself in a situation where my emotions were all over the place and grief seemed to take over. When you’re suddenly sad or grieving a huge loss and find yourself crying frequently, you can make it worse sometimes with an added sense of panic …
(click here for part one) NICU staff is amazing After parking ramps and long hallways (thank goodness for the wheelchair!) we made our way to the University of Minnesota NICU. After much scrubbing we were reunited with him. It was late on a Friday, so his surgery (oomphalocele repair) would not be done until Monday. …
